Last Thursday, we brought Aiden to the Roger Maris Cancer Center in Fargo for an appointment to see a pediatric oncologist. This appointment was to simply get a second opinion and probably set up a biopsy on the node that is STILL swollen. We are, of course, trying to rule out Lymphoma (yeah, I know scary word, but there's no way around it) All I have to say is what a waste of time, and gas. First, we didn't even see the doctor that we were referred to by his primary doctor (Dr. Z., who I might ad is amazing) Somthing was screwed up and we ended up seeing a different peds. Oncologist who decided that he would like to order a biopsy because the lump felt "harder and bumpier than he would like it to be" ... but before he ordered a biopsy, he wanted us to see an Ears Nose and Throat Doc (ENT) for yet another opinion. We waited an hour after our appointment time to see a doctor that hadn't even recieved Aiden's medical records (you know all the IMPORTANT stuff like his CT scan, x rays, hospital reports, blood work...) that the cancer center peeps were supposed to WALK over to them... so he based his "opinion" on just looking at Aiden for 5 minutes and determaining that we can wait ANOTHER 2 and 1/2 weeks before doing a biopsy. This has been going on since the Saturday before Thanksgiving. He said that he sees kids with swollen lymph nodes like this at least a dozen times every winter, and that sometimes it can take months for them to go down. So he sent us home and told us to come back on December 29th.
Well, you know what we discovered... when you visit with a cancer doctor, then read WebMD, and sit and stew over this whole theory for 2 weeks; waiting is NOT an option.
So We visisted with Dr. Z. yesterday during Aiden's regularily scheduled Well Baby check up. Dr. Z apologized for the mix up, she seemed a little... upset that things did not go as planned, we were supposed to see this other doctor who she had already spoke to, and knew our story, and who was going to probably set up a biopsy and we shouldn't have had to see the ENT at all being that Aiden has seen the ENT specialist here in GF twice now.... so anyway, we all decided that a biopsy needed to be done asap, and that we were done dealing with Fargo. Only catch is that Aiden currently has an icky weeze and cough and cold, so he can not go under an anestetic for a biopsy until he is completely healthy for a whole week. SOOOO.... in hopes that he gets better soon, we have scheduled a biopsy for January 2nd with a pre-op appointment on the 30th to see if he is healthy enough to have the surgery.
They will remove the entire node, which is actually a very easy proceedure. It only takes like 15-30 minutes and its same-day so he'll get to come home. I dont' know how long it will take for them to find the results of the biopsy. I just want this over and done with.
Everyone is telling us to think positive. We are doing that to the best of our abilities. Its scary, thats for sure. I've stopped reading WebMD, as I am blocking the word "Lymphoma" out of my vocabulary for the next couple of weeks.
We are focusing on having an AMAZING birthday party for Aiden. He LOVES SpongeBob and even though I do not, we are having a SpongeBob themed party. When I finally caved in to the idea of a "Bob Bob" party, I decided that if I was going to do this, I was going to REALLY DOOOO this. Balls out, man.... when Aiden walks into that room, he's going to think he is actually IN Bikini Bottom and that he himself IS SpongeBob. I can't wait to see his face!!! He's going to LOVE it.
I work everyday next week, (yeah Christmas too) so Kevin, Aiden and I are having just a small Christmas thing with just the three of us (I mean 4 counting FuzzyButt, who BTW hasn't taken one single orniment off the tree yet) Ham is Aidens favorite, right up there with hot dogs and pizza anyway. So we're having that for Christmas dinner. Santa will come in the morning and I can't wait to see how he reacts to MORE presents under the tree.
So thats how its been around here. I've been meaning to post a bunch of pics from Thanksgiving, but our computer is being a giant bitch and throwing temper tantrums. I'll try again tomorrow when I have more time.
Friday, December 19, 2008
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6 comments:
Hey, think pos--I mean, ummm...What's that behind you?! (Run Doug!)
Distraction's really do work! You've got a little while before anything will be done and you'll have any answers, so just try to enjoy all the little things!! Like how smart your little man is..."robot, star, dinasour," I was amazed at how quickly he went thru that whole pile of flashcards!! You are a stong family and have all of us here to support you and help you out in any way imaginable! So there, that's my two cents!
We picked out Aiden's birthday and christmas presents last night!! Don't worry, it's two seperate gifts! I'm excited to give them to him cuz I think they're awesome! I wish I would have had more time to make his birthday cake for the party...but like I said, I could still make one for him if you come to DL later on.
Call if you need anything!
Hang in there April! You guys are in my thoughts and prayers A LOT! (so I hope it helps :) I can't wait for Aiden's b-day bash. I'm sorry you have to work on Christmas...that doesn't seem fair. You should be with your family. See ya soon, and you know it IS OK to ask for help if you need it.
WebMD is a horrible website and should be taken down. All it does is give people scary thoughts in their heads. I need to stop looking at it too. ;)
I'm just glad that Aiden is too young to know that everyone is trying to think positive. It makes me feel better knowing that he's oblivious to why he's had to see doctors so much lately and is able to play and act like his normal amazing little self.
I can't wait until this is all over and done with. Just think, a year from now you'll look back and think how much these last few weeks sucked big balls, but you'll be soooo happy that you'll be planning his 3rd birthday already. And bonus, you'll have the Spongebob theme out of the way. :)
It will be ok. What a stupid thing to say but it will be. Aiden is such a tough little cookie, he just really likes to scare mommy and daddy thats all.
We always make sure we seperate the Christmas and Birthday gifts for him too. He shouldn't get screwed out of a present, lol.
We'll be praying for Aiden - doctors are such pains - can't ever just get an answer for you!
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